March 27
The Beaumont High School Class reunion this weekend was great. Such fun to see so many friends now scattered across the United States. We shared many hugs and life altering stories. I had not eaten in a resturant or been around a crowd of people since January. Fried Cajun seafood never tasted so good.
Good news Sunday night when we returned home to a message that three potential match donors are being screened for the transplant. Onward......................
Monday, March 27, 2006
Saturday, March 18, 2006
SATURDAY, MARCH 18TH: Woman with the Golden ArmI completed the second round of chemotherapy (called consolidation) this week and was given a shot in the arm of Neulasta. Neulasta costs $6,000 per injection. Afterwards the nurse said, "be aware that your bones and joints may ache". Thanks for the information.
Now I am on a holding patttern until the call from Methodist that a donor match has been found for the transplant. It could be 4 to 8 weeks. In the meantime I am to avoid crowds, infection, and respect fatigue. So far so good.
The special support of family and friends makes both arms feel golden. SS
Monday, March 13, 2006
MONDAY, MARCH13: Brief update. Chemo continues and its ill effects caught up with Sally today. Ever feel blah? Can't get comfortable in any position? Food, even ice cream, tastes like kerosene? Chest hurts from the metal thing implanted in there? Pushing the chemo pole down the hall is the highlight of your day?
If so, you are a member of the "chemo buddy" club. The bright light in the tunnel is that she goes home tomorrow.
The wonderful response from all you readers makes a big difference to Sally. Your cards and notes are truly appreciated and are the highlight of her day. Our biggest THANK YOU.
More later,
Bob
If so, you are a member of the "chemo buddy" club. The bright light in the tunnel is that she goes home tomorrow.
The wonderful response from all you readers makes a big difference to Sally. Your cards and notes are truly appreciated and are the highlight of her day. Our biggest THANK YOU.
More later,
Bob
Saturday, March 11, 2006
SATURDAY, 03/11/2006:
Again thank you family and dear friends for your cards, comments, prayers, and positive thoughts I am so very grateful to each of you.
Three days ago we walked into Methodist again for the consolidation phase of the chemtherapy. Bob and I carried two suitcases packed with coffee pot, PJs, pictures etc. and the New York Marathon poster. Dr. Foote met us at the door and from that point on it was welcome back. Onward with the program. Everthing is going as it is supposed to. I should leave here late Tuesday for an at home recovery process. The best part is that the entire team supports my decision to attend the Beaumont High School reunion on March 24. Hopefully the transplant process will take place mid to late April.
The poster tells it all. We are going from miles 8 to 18 now. The greatest challenge is from miles 18 to 26.2. Onward............
Tuesday, March 07, 2006
TUESDAY, MARCH 7, 2006
Yesterday I went back to work at my Houston HUD office and discovered all over gagain that I love what I do. So good to see my friends and see the progress they have made. I am really looking forward to being back in touch with my colleagues at the Interagency Council on H0melessness.
Today started with a 3 mile early morning run at Rice. What a joy.
An 11:45 AM appointment with Dr. Foote delivered results from my bone marrow test that shows we have achieved the goal of remission. Thank you for your prayers and positive thoughts. Praise the almighty.
So far so very good.
Thursday I return to Methodist to begin 5 days of consolidation chemotherapy.
I have decided that Leukemia is my. marathon for this year. I have reached mile 9 with 17.2 miles to go. My poster from the New York Marathon reads "At 18 miles you wonder why you do this. At 26.2 miles it all becomes perfectly clear." I am bringing the poster to Methodist with me on Thursday morning.
Thursday, March 02, 2006
WEDNESDAY/THURSDAY, 3/1&2/06 combined:
No pictures today but...... we are home!!!!
Yesterday I walked out of Methodist Hospital just as I walked in exactly one month ago. Well not exactly as I walked in on February 1. Last month my blood count was exteremly low yet I had the usual bundle of energy. Now the blood count is up and the energy is shall we say in the catch up phase. The medical team advised that I resume running so I tried today. OK no comment. I enjoyed the birds singing and admired the blooming azaleas throughout our neighborhood.
My coming home surprise from Bob is that he has planted red geraniums all accross the front of our house. Beautiful. This time off is so nice before I go in for another round of chemo in about ten days.
Thank you family and friends for your prayers, positive thoughts, cards and mail. You are so appreciated.
No pictures today but...... we are home!!!!
Yesterday I walked out of Methodist Hospital just as I walked in exactly one month ago. Well not exactly as I walked in on February 1. Last month my blood count was exteremly low yet I had the usual bundle of energy. Now the blood count is up and the energy is shall we say in the catch up phase. The medical team advised that I resume running so I tried today. OK no comment. I enjoyed the birds singing and admired the blooming azaleas throughout our neighborhood.
My coming home surprise from Bob is that he has planted red geraniums all accross the front of our house. Beautiful. This time off is so nice before I go in for another round of chemo in about ten days.
Thank you family and friends for your prayers, positive thoughts, cards and mail. You are so appreciated.
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